I had a stabbing pain in my chest while I was at work on Tuesday evening. I was busy so I tried to ignore it, but after about an however I couldn't tolerate it any longer, it was as if a knife was being forced through the wall of my chest. So I went to the bathroom to investigate and I found that the underwire in my bra had snapped and the rough end had forced it's way through the material and it was in the process of embedding itself into my skin. I removed the the broken underwire, it left me looking a bit lopsided for the rest of the evening but at least I had put a stop to the pain. It was one of my favourites and finding a comfortable replacement will be challenging, but that is a problem for another day.
On the subject of clothes, I was treated to a fashion show when I got home from work. My son was getting ready for his university interview the next day and he planned his outfit very carefully. We were consulted about his choice of shirt, the colour of his tie and then we were asked to help him choose the most suitable tie. I used to think that choosing what to wear was much easier for men, but now I am not so sure. I think he looked very smart and he worked very hard to ensure that he was well prepared for his interview so all we can do now is to keep our fingers crossed.
Showing posts with label pain. Show all posts
Showing posts with label pain. Show all posts
Thursday, 10 January 2013
Saturday, 15 December 2012
A new version of the Cossack Dance
I have written before about Robbie's tendency to 'dance' with fury when I irritate him. When he is cross with me and he tries to express his opinion he does this strange thing where he puts his hands on his hips and keeps bending his knees. Then as he warms to his theme he starts flapping his arms and then thrusting one arm forward to emphasise his argument. I sometimes struggle not to laugh because if it was speeded up a bit it really would look like a Cossack dance. I wrote about it way back in 2007 after a particularly frustrating morning with Robbie.
"Now to explain this morning's upset. We got up in good time and Robbie had as long as he needed in the bathroom, so things were going well. Considering they only have fractionally more to wash than women, I can't understand why men need to take so long in the bathroom!
The trouble started when we got to the station, Robbie went to get the parking ticket. I realised that he had brought his rucksack, I attempted to lift it and found that it contained a hundredweight of work documents as well as, diary, ipod, magazines, snacks and all the 'essentials' to deal with any conceivable railway emergency! Samuel has an unhealthy attachment to his rucksack too, he hates to be parted from it, but he has Asperger's Syndrome, Robbie is allegedly normal!
I took his ipod, pager and sweets out of his rucksack and put them in my handbag. When he returned I refused to let him take his rucksack. He would look ridiculous with a suit and a rucksack, I didn't want him to look like a Sherpa! Robbie went mad and had a full scale tantrum in the car park. I won the first round and he thundered off with what I can only describe as a cross between a stomp and a shuffle - if it had been speeded up it would have looked like a Cossack dance! He was impossible and he continued the argument on the train, I was tempted to tip my hot chocolate over him, but it was too expensive to waste. It took him until almost lunchtime to recover his temper - so much for Valentine's Day!"
Last night I woke at about 3am when Robbie shouted out and then leapt out of bed. I am not at my best at 3am and it took me a while to become fully awake and make sense of what was happening in the bedroom. The first thing that I became aware of was torrent of swear words fired through the darkness like a volley of gunfire. As my eyes got used to the darkness I saw the silhouette of Robbie over by the bedroom door. As well as the copious swearing he appeared to be going through a series of jerky movements. I hadn't been too surprised by the swearing, after all this is a man who frequently talks to his socks and underwear in the middle of the night (he always has to put his clothes for the next day in the dark because he waits until I have gone to bed - and he always wakes me up!). I gradually interpreted the jerky movements, he was bending forwards and sticking one leg out as if he was pushing his heel into the floor, it looked like a robot doing a Cossack dance, but it was cramp and Robbie was in agony!
I felt so useless because nothing that I could say or do would help. He often gets cramp at night, but I think the pain was more severe last night. It is scary to see him in so much pain
"Now to explain this morning's upset. We got up in good time and Robbie had as long as he needed in the bathroom, so things were going well. Considering they only have fractionally more to wash than women, I can't understand why men need to take so long in the bathroom!
The trouble started when we got to the station, Robbie went to get the parking ticket. I realised that he had brought his rucksack, I attempted to lift it and found that it contained a hundredweight of work documents as well as, diary, ipod, magazines, snacks and all the 'essentials' to deal with any conceivable railway emergency! Samuel has an unhealthy attachment to his rucksack too, he hates to be parted from it, but he has Asperger's Syndrome, Robbie is allegedly normal!
I took his ipod, pager and sweets out of his rucksack and put them in my handbag. When he returned I refused to let him take his rucksack. He would look ridiculous with a suit and a rucksack, I didn't want him to look like a Sherpa! Robbie went mad and had a full scale tantrum in the car park. I won the first round and he thundered off with what I can only describe as a cross between a stomp and a shuffle - if it had been speeded up it would have looked like a Cossack dance! He was impossible and he continued the argument on the train, I was tempted to tip my hot chocolate over him, but it was too expensive to waste. It took him until almost lunchtime to recover his temper - so much for Valentine's Day!"
Last night I woke at about 3am when Robbie shouted out and then leapt out of bed. I am not at my best at 3am and it took me a while to become fully awake and make sense of what was happening in the bedroom. The first thing that I became aware of was torrent of swear words fired through the darkness like a volley of gunfire. As my eyes got used to the darkness I saw the silhouette of Robbie over by the bedroom door. As well as the copious swearing he appeared to be going through a series of jerky movements. I hadn't been too surprised by the swearing, after all this is a man who frequently talks to his socks and underwear in the middle of the night (he always has to put his clothes for the next day in the dark because he waits until I have gone to bed - and he always wakes me up!). I gradually interpreted the jerky movements, he was bending forwards and sticking one leg out as if he was pushing his heel into the floor, it looked like a robot doing a Cossack dance, but it was cramp and Robbie was in agony!
I felt so useless because nothing that I could say or do would help. He often gets cramp at night, but I think the pain was more severe last night. It is scary to see him in so much pain
Thursday, 16 August 2012
Bat Watching
After the car boot we took a drive to Mundesley for a wonderful roast dinner at Jonet. I had a feast of vegetables because Robbie only wanted a few peas and carrots so I had all his cauliflower, sweet corn as well as my own vegetables. There is something extra special about a roast dinner when you haven't had to cool it and I really enjoyed it.
We spent a little while in Mundesley, enjoying the beach and soaking up the sunshine, then we took a gentle drive back to the bungalow. We had a walk on the beach and we sat in the garden for a little while. I didn't stay outside for too long because I was afraid of getting burnt, I had sun block on but I still caught the sun a bit.
At dusk we stood outside and watched the bats flying around the garden, I love watching them. They are so quick that it is hard for my eyes to keep up with them, but there is something soothing about watching them
Sunday, 12 August 2012
Out on The Drags
Robbie had persuaded me to give him a day off on Saturday, he wanted to do what he calls 'the drags' which from what I understand involves travelling backwards and forwards on trains all day. On summer Saturdays Greater Anglia run holiday maker trains which allow people to travel from London to Great Yarmouth on a through train. They are called drags because there are no wires between Norwich and Gt Yarmouth so the diesel loco has to pull the train from Norwich. It takes Robbie all day because he likes to get full value from his Rover ticket. Yesterday we had to get up at 6am in order to get him to the station on time, but his legs let him down and he got back much earlier than planned. His pain level has been really bad recently, I hope it will ease off soon because we are running out of options in terms of pain management.
I had a lovely day, the weather was perfect and I had plenty of time to enjoy the beach. I went to Mundesley at lunch time, it was a very enjoyable couple of hours, it was such a lovely day. I also had time to have a nice long chat with 'the other Mrs Jones' I have missed her very much while we have been away.
Tuesday, 7 August 2012
The Bus Spotting Begins
We were awake fairly early on Monday morning, that suits me very well, it is so nice to get up and have time to enjoy the beauty of the morning and the luxury of time. We didn't do much this morning, it was such a nice day that we were content to stay close to the bungalow and enjoy the sunshine. Robbie is missing his trains already but he has an app in his i-pad to identify all passing shipping and I have caught him several times standing in front of the window (in his knickers) talking to the ships on the horizon. He should be ok we are a bit too remote for the men in white coats!
At lunchtime we took a leisurely drive to North Walsham to buy some cards and to have a look around. I like North Walsham, it still has a distinct character with small shops instead of the same old chain stores that you find on every high street. Robbie kept drifting off to do a bit of bus spotting, he just can't help himself. Robbie's legs were misbehaving today so we didn't stay out too long, but we visited our favourite shops and he had time to buy a stash of magazines. We enjoyed a cup of coffee and a cake at the coffee shop before heading back to enjoy the afternoon sunshine.
At lunchtime we took a leisurely drive to North Walsham to buy some cards and to have a look around. I like North Walsham, it still has a distinct character with small shops instead of the same old chain stores that you find on every high street. Robbie kept drifting off to do a bit of bus spotting, he just can't help himself. Robbie's legs were misbehaving today so we didn't stay out too long, but we visited our favourite shops and he had time to buy a stash of magazines. We enjoyed a cup of coffee and a cake at the coffee shop before heading back to enjoy the afternoon sunshine.
Sunday, 24 June 2012
Therefore let us not sleep, as do others; but let us watch and be sober - 1 Thessalonians 5:6 King James Version
Robbie wanted to go out on Friday evening, I wasn't keen because he'd had a very challenging week and I knew that he was very tired and struggling to cope with pain from his back and legs. However it was the anniversary of his friend's death and he needed to meet with other friends to remember better times. I begged him not to be too late home because I was tired too and I didn't want to be too late to bed.
We had spoken on the phone before he went out and I kept my mobile close to me hoping that he would remember his promise not to be too late. It remained silent all evening so I sent him a text to say that I was going to bed and he should ring me when he needed a lift. I sat in bed listening to the radio and doing some writing on my netbook, trying to stay awake. He finally rang to say that he needed picking up at midnight and I asked him to ring me again when he got to Rugby just to make sure that I hadn't dozed off. Time marched on and no call came, so I set off for the station, I thought Robbie had just forgotten ring.
When I got to the station I began to worry that Robbie may have fallen asleep, so I rang him several times and sent texts for him to contact me, but there was no reply. A stream of people wandered wearily around to the car park indicating that Robbie's train was in, I looked and looked but there was no Robbie. After a brief flurry of activity the car park was still and silent again and I was still there waiting. Time passed very slowly but eventually a few more weary travellers came into view, another train had arrived, but after a brief moment of hope my heart sank, there was no sign of Robbie. By this time I was seriously worried, my mind raced, perhaps he'd had a bad fall, perhaps he had even fallen under a train ........... Finally the truth became clear, a rather confused text from Robbie revealed that he had fallen asleep on the train and ended up in Buckinghamshire. A phone call followed and a rather unhappy Robbie admitted that it would be a long wait for him to make his way back. I wasn't best pleased, but at least he was safe, so I couldn't be too angry. We finally got home at about 2am - not the best start to a weekend!
We had spoken on the phone before he went out and I kept my mobile close to me hoping that he would remember his promise not to be too late. It remained silent all evening so I sent him a text to say that I was going to bed and he should ring me when he needed a lift. I sat in bed listening to the radio and doing some writing on my netbook, trying to stay awake. He finally rang to say that he needed picking up at midnight and I asked him to ring me again when he got to Rugby just to make sure that I hadn't dozed off. Time marched on and no call came, so I set off for the station, I thought Robbie had just forgotten ring.
When I got to the station I began to worry that Robbie may have fallen asleep, so I rang him several times and sent texts for him to contact me, but there was no reply. A stream of people wandered wearily around to the car park indicating that Robbie's train was in, I looked and looked but there was no Robbie. After a brief flurry of activity the car park was still and silent again and I was still there waiting. Time passed very slowly but eventually a few more weary travellers came into view, another train had arrived, but after a brief moment of hope my heart sank, there was no sign of Robbie. By this time I was seriously worried, my mind raced, perhaps he'd had a bad fall, perhaps he had even fallen under a train ........... Finally the truth became clear, a rather confused text from Robbie revealed that he had fallen asleep on the train and ended up in Buckinghamshire. A phone call followed and a rather unhappy Robbie admitted that it would be a long wait for him to make his way back. I wasn't best pleased, but at least he was safe, so I couldn't be too angry. We finally got home at about 2am - not the best start to a weekend!
Tuesday, 19 June 2012
“A man too busy to take care of his health is like a mechanic too busy to take care of his tools.” Spanish Proverb
It is not unusual for me to be annoyed with Robbie - he would probably tell you that being 'in the doghouse' was an almost daily occurrence! That isn't true, of course there are minor irritations and I get annoyed when he rearranges the fridge, hides the recycling bin, puts things out of my reach and leaves the toilet seat in the wrong position (believe me I could come up with a much longer list!) but serious disagreements are much less common.
We are a very odd and unconventional couple, but it works, I love him more than I could express in words and I know that he feels the same. That is why I worry about him, especially when it comes to looking after his health and well being and I get seriously annoyed when he takes foolish risks with his health. Yesterday he was at the railway station by 6.10am and he didn't get back to Northampton until 11pm. He was asleep on his feet and in so much pain that he could hardly walk! Nothing so important that it is worth risking your health. A friend of his gave him some very sound advice, I just hope he takes notice.
" .......... She speaketh of kind tongue. The railway will break itself without your intervention, and it will heal itself thus. Will the railway fixeth you? The runes say "bugger off". Do less more often; the difference is negligible."
We are a very odd and unconventional couple, but it works, I love him more than I could express in words and I know that he feels the same. That is why I worry about him, especially when it comes to looking after his health and well being and I get seriously annoyed when he takes foolish risks with his health. Yesterday he was at the railway station by 6.10am and he didn't get back to Northampton until 11pm. He was asleep on his feet and in so much pain that he could hardly walk! Nothing so important that it is worth risking your health. A friend of his gave him some very sound advice, I just hope he takes notice.
" .......... She speaketh of kind tongue. The railway will break itself without your intervention, and it will heal itself thus. Will the railway fixeth you? The runes say "bugger off". Do less more often; the difference is negligible."
Friday, 1 June 2012
"Take time to smell the roses"
I had such a horrible day yesterday, I have been struggling with a bad cough for weeks and it caused me to have an asthma attack at work. It left me feeling dreadful, struggling to breathe and very shaky and scared. When I got home it was clear that Robbie was in so much pain that he was struggling to cope, it make me feel so useless because I can't make it better for him. I think we both had a bad night and I was less than enthusiastic this morning when the alarm clock insisted that it was time to face another day. When I walked out to the car, I noticed that our roses are out, there is a mass of yellow buds on the rose bush near the front door and there are deep pink flowers on the climbing rose at the side of the garage. They must have been in flower for several days but I hadn't noticed. I expect today will still be challenging but taking a few moments to enjoy the roses really brightened my morning.
Wednesday, 16 May 2012
It's a little bit funny this feeling inside .......... - Elton John
Robbie didn't have the best start this morning, he arrived at the station and realised that he had left both his blackberries on the dining table, so I had to make a mercy dash to reunite him with his phones. I wasn't best pleased but when I saw his guilty grin I couldn't be cross with him. When he leaned into the car to give me a kiss and to say thank you, he mentioned that he had a strange pins and needles type pain at the top of his leg, just below his buttock. He said it felt a bit like when the injection is wearing off after dental treatment. I was worried because it did not sound like his usual sort of pain.
When I checked on him a bit later on he mentioned that the discomfort seemed to be moving down his leg and it was very itchy. I didn't hear from him again until later that morning when the cause of his problem had been discovered. He was out until late last night and when he came home he decided that he had wash his 'smalls' because he wanted to wear his favourite pair the next day. I was tired and left him to it. Apparently he didn't check the dryer before he put his items in to dry. I had washed all my kitchen cloths earlier in the day and somehow a small flat scourer found its way unnoticed into Robbie's pants! By the time he had got to work it had worked its way down his leg and as he made himself a cup of coffer it fell out from his trouser leg!
When I checked on him a bit later on he mentioned that the discomfort seemed to be moving down his leg and it was very itchy. I didn't hear from him again until later that morning when the cause of his problem had been discovered. He was out until late last night and when he came home he decided that he had wash his 'smalls' because he wanted to wear his favourite pair the next day. I was tired and left him to it. Apparently he didn't check the dryer before he put his items in to dry. I had washed all my kitchen cloths earlier in the day and somehow a small flat scourer found its way unnoticed into Robbie's pants! By the time he had got to work it had worked its way down his leg and as he made himself a cup of coffer it fell out from his trouser leg!
Wednesday, 25 April 2012
The quickest way to know a woman is to go shopping with her - Marcelene Cox
I think it is a myth that women love to shop, I detest shopping and I do everything in my power to avoid it. Robbie loves to shop, if shopping was an Olympic sport he would be a gold medalist! Pain permitting he will happily wander from shop to shop making a mental note of everything in stock. He is interested in absolutely everything, clothes, shoes, books, toiletries, gadgets, kitchen equipment, you name it Robbie knows about it! When he can't shop he reads about shopping, even about the changing dimensions of toilet rolls!
These days unfortunately pain and long working hours limits Robbie's enjoyment of shopping to some extent these days. I find myself I often find myself doing errands for him and woe betide me if I get the wrong item. Yesterday I went shopping for food, just day to day items mainly, but Robbie likes a particular brand of chicken and mushroom pie and I was going to get one of those for him too. They didn't have any in stock so I was brave (or foolish) enough to buy an alternative brand instead. It was a more expensive brand so I thought Robbie may be willing to try it. As soon as I told him about it he had that sulky look that he does so well. It was as if a big black cloud had settled over us. He said he was unhappy because the quality of the gravy was bound to be wrong and he would rather go without than have to put up with an alternative. Failed again!
I failed last week too, I bought the usual brand of liquid soap, but I chose the green one with aloe vera rather than the usual option. Robbie gets very sore cracked hands and I thought the aloe vera may be good for his skin. He was not impressed, he complained plaintively about the 'smell' I think it is quite pleasant, but it doesn't float Robbie's boat. It looks as if we will have to have his and hers hand wash for a while until I work my way through the three bottles of aloe vera that I bought. Today he mentioned that he needs more hair stuff. I am dreading getting that because when they changed the packaging I bought a stash of the old design, but now he has to adjust to the new pack and I know that he will moan about it. I guess I will just have to throw a deaf ear, I am good at that, I get lots of practice.
I am quietly confident that he will be pleased with one recent purchase. I have to do some odd things for Robbie at times but 'feeling' Lego men has to be closet to the top of the list. The minifigures come in individual sealed packs, there are 16 to collect but the only reliable way to find the one you want is to feel the pieces through the foil bag. I have become very good at finding them this way, but I have had some very dodgy looks. I must be mad, standing in the shop for ages 'molesting' Lego men, just to put a smile on Robbie's face! He only opens one figure each day and he still has a couple of unopened ones in his stash, but I am confident that they will complete his set of series 7 minifigures.
These days unfortunately pain and long working hours limits Robbie's enjoyment of shopping to some extent these days. I find myself I often find myself doing errands for him and woe betide me if I get the wrong item. Yesterday I went shopping for food, just day to day items mainly, but Robbie likes a particular brand of chicken and mushroom pie and I was going to get one of those for him too. They didn't have any in stock so I was brave (or foolish) enough to buy an alternative brand instead. It was a more expensive brand so I thought Robbie may be willing to try it. As soon as I told him about it he had that sulky look that he does so well. It was as if a big black cloud had settled over us. He said he was unhappy because the quality of the gravy was bound to be wrong and he would rather go without than have to put up with an alternative. Failed again!
I failed last week too, I bought the usual brand of liquid soap, but I chose the green one with aloe vera rather than the usual option. Robbie gets very sore cracked hands and I thought the aloe vera may be good for his skin. He was not impressed, he complained plaintively about the 'smell' I think it is quite pleasant, but it doesn't float Robbie's boat. It looks as if we will have to have his and hers hand wash for a while until I work my way through the three bottles of aloe vera that I bought. Today he mentioned that he needs more hair stuff. I am dreading getting that because when they changed the packaging I bought a stash of the old design, but now he has to adjust to the new pack and I know that he will moan about it. I guess I will just have to throw a deaf ear, I am good at that, I get lots of practice.
I am quietly confident that he will be pleased with one recent purchase. I have to do some odd things for Robbie at times but 'feeling' Lego men has to be closet to the top of the list. The minifigures come in individual sealed packs, there are 16 to collect but the only reliable way to find the one you want is to feel the pieces through the foil bag. I have become very good at finding them this way, but I have had some very dodgy looks. I must be mad, standing in the shop for ages 'molesting' Lego men, just to put a smile on Robbie's face! He only opens one figure each day and he still has a couple of unopened ones in his stash, but I am confident that they will complete his set of series 7 minifigures.
Thursday, 29 March 2012
Pyjama Problems
Robbie had a better night last night, partly because he didn't dare to go to bed until it was almost time to get up! I know he must be feeling as tired as I am because trying to wake him up this morning was like trying to wake the dead. I think it's a minor miracle that he managed to get to the station in time for his usual train this morning. I am rather worried that he will be sound asleep by the time he gets to New Street, but hopefully it will be a service that terminates there and he will not wake up to find himself heading further north!
On the subject of sleep my son has a problem. Most people think that being one of only a handful of boys at a girls school would be a dream come true, but it can cause unexpected problems. On Friday his school have a pyjama day to raise funds for something or other. He doesn't possess any pyjamas, he usually wears boxers in bed. He does have a onesie but he claims is skin tight and it would attract too much attention if he wore it to school. So it looks as if he will have to pass on the PJs and just go to school in his normal clothes. Chatting to him about this reminded me of a PJ related incident when he was about eight or nine and trying to be very grown up. At 17 he doesn't like to be reminded of the things he did when he was younger but I treasure all those funny little memories.
2004
There was a funny little episode last week with S. A couple of days before he went to his first sleepover he said he absolutely had to have some deodorant – Sure for Men Sensitive to be exact. We went to get him some deodorant, but while at the shop he asked for FCUK pre shave face wash. I pointed out that he doesn't shave but he said "it says pre shave, and I will shave one day so it is ideal for me". He went to the sleepover with his grown up toiletries and his new leather jacket looking really cool. A couple of days after he got back I asked him if his mates had been impressed by his grown up stuff. He gave me a long stare, then in a very serious voice he said "you spoiled the effect mum, you packed my Buzz Lightyear pyjamas!"
On the subject of sleep my son has a problem. Most people think that being one of only a handful of boys at a girls school would be a dream come true, but it can cause unexpected problems. On Friday his school have a pyjama day to raise funds for something or other. He doesn't possess any pyjamas, he usually wears boxers in bed. He does have a onesie but he claims is skin tight and it would attract too much attention if he wore it to school. So it looks as if he will have to pass on the PJs and just go to school in his normal clothes. Chatting to him about this reminded me of a PJ related incident when he was about eight or nine and trying to be very grown up. At 17 he doesn't like to be reminded of the things he did when he was younger but I treasure all those funny little memories.
2004
There was a funny little episode last week with S. A couple of days before he went to his first sleepover he said he absolutely had to have some deodorant – Sure for Men Sensitive to be exact. We went to get him some deodorant, but while at the shop he asked for FCUK pre shave face wash. I pointed out that he doesn't shave but he said "it says pre shave, and I will shave one day so it is ideal for me". He went to the sleepover with his grown up toiletries and his new leather jacket looking really cool. A couple of days after he got back I asked him if his mates had been impressed by his grown up stuff. He gave me a long stare, then in a very serious voice he said "you spoiled the effect mum, you packed my Buzz Lightyear pyjamas!"
Wednesday, 28 March 2012
Best Foot Forward
Robbie and I had a 'frank exchange of views' last night, I know it is silly to argue about trivial stuff but honestly how hard is is for a man to understand the difference between a dish cloth and a floor cloth!! We have the sense not to argue for long, there are so many more important things in life that it is foolish to argue about trivia.
We had a disrupted night which left me feeling useless or perhaps helpless is more accurate. I woke at 2.15am to find Robbie in agony, he was crying with pain and running through his extensive repertoire of expletives. He couldn't move and his leg was in spasm to such an extent that you could feel it 'jumping'. There was absolutely nothing I could do to help or to ease his pain. It seemed to go on forever, but in reality it was perhaps half an hour or so before the pain eased slightly. He was still moaning with pain at around 3am when exhaustion finally allowed him to fall asleep. Sleep eluded me for at least another hour, I just lay there worrying and feeling useless.
This morning we had to get up a bit earlier than usual, to give him more time to get ready. I took him to the station so that he had extra time to walk to the platform. I knew he was worried about how he would walk from the station to the office, he mentioned it several times in the car. He said that he would just take his time and he would be OK. I wish I could do something to help, I feel so helpless. As he got out of the car he said "Best foot forward". I am so proud of him, even on a bad day like this he just keeps going. He doesn't give up and somehow he faces the day with a smile.
Monday, 27 February 2012
Teaching an Old Cat New Tricks
I saw far too much of the station car park last week, Robbie was working impossibly long hours and he was in so much pain that getting home on his own really wasn't an option. Thanks to the 'rancid green machines' (which are the bane of Robbie's life) I had plenty of time to take in all the 'delights' of Northampton Station. In fact I could probably have read the whole of War and Peace during my evening sojourns at the station. So by the time we got home and and got a meal on the table, Robbie was nodding off before his fork reached his mouth, like the dormouse at the Mad Hatter's tea party in Alice in Wonderland.
It seemed as if the fun and closeness of the week before was just a distant dream but when life is tough and stressful, you have to take pleasure in the little things and the fleeting moments of fun. One evening after our meal I came into the lounge and was surprised to find Robbie wide awake and sitting at his computer. I was even more surprised to see Dave the cat sitting on his lap with his front paws leaning on the table, apparently looking at the computer screen. I told Robbie to "get that cat away from the table" but both he and the cat ignored me - nothing new there. As I sat down I realised that Robbie was talking to the cat comments such as "look at that one" and "this one is even better". Curiosity got the better of me and I walked over to see what they were doing. To my amazement they were looking at pictures of ginger cats! One thing is certain, there is no one in the world quite like Robbie and I am proud of him for so many reasons, but most of all for being true to himself.
Sunday, 11 December 2011
Smooth seas do not make skillful sailors. ~ African Proverb
It has been a challenging weekend, Robbie has been reduced to a standstill by his misbehaving legs and other assorted problems. I hate to see him in so much pain especially when there is nothing I can do except let him moan at me, it makes me feel so useless. I really do try my best not to mind when he moans, I know it is just his frustration and discomfort speaking, but I have to confess that he gets his answer sometimes. It is at times like this that I wish we lived next to a busy railway line because then he could time the trains to the second and think up better ways to run the railway instead of interfering with the way I do things! I try (and sometimes fail) to smile sweetly and remember the words of G K Chesterton 'Do not free a camel of the burden of his hump; you may be freeing him from being a camel'. Perhaps being grumpy helps him to deal with the pain.
We didn't put the Christmas tree up as planned because there was now way that Robbie could get into the loft and while I may have been able to get in, I was very doubtful about my ability to get out again. I will ask 'the son who must not be named' to get the tree down - when Robbie is not there to supervise! Daughter number two finally produced her Christmas wish list so thanks to the internet I was able to get on with my Christmas shopping without leaving the house. I have almost finished my shopping for presents, but the food shopping is still looming large on the horizon. We didn't go out except to get a few essential groceries, and a non essential and terribly sinful bread and butter pudding - my favourite! Even when he is not well Robbie still manages to tempt me to wickedness!
One nice thing about this weekend was that I had time to catch up with writing the blog and I was able to chat online to a friend that I don't get the chance to chat to very often. It is nice to chat sometimes, it helps me to understand people better, it helps to put my thoughts in order and it reminds me to value the things that are really important in life and not to stress to much about the things that don't really matter. Robbie may be challenging at times, he may have his own unique way of doing things and he may have all the sensitivity of a rhinoceros at full charge, but when it comes to the things that really matter he doesn't let me down and I wouldn't swap him for the world!
Friday, 9 December 2011
'There must be quite a few things that a hot bath won't cure, but I don't know many of them' - Sylvia Plath
![]() |
| Photo by Linneabe |
I don't say we all ought to misbehave, but we ought to look as if we could - Orson Wells
![]() |
| Photo by Venteco |
Most people will know that Robbie hates what he refers to as 'green trains' with a passion. They are used by London Midland on his route to work and they simply don't offer him enough leg room to sit for an hour (to or from Birmingham) without unbearable pain. He goes to a lot of trouble to plan his journeys so that he avoids them. He gets up stupidly early every morning just to catch a 'blue train' to work and have a less painful journey. When he can't avoid the 'green trains' he has to break his journey at Coventry and wait for a train with more leg room. It takes such a lot of effort just to make a simple journey and it makes him very tired because he has a very long day, so it is not surprising that I worry about him. I have to be very careful what I say because he hates to make a fuss about his pain or to admit that he struggles sometimes. He will be cross with me for mentioning it, but my greatest fear is of him falling down the side of a train. He says it is just an irrational fear and I am being silly, but it has happened to him before and if it happened again I know he could get badly hurt.
Yesterday when I got home from work I was very concerned because it was clear that he was in considerable pain. He wasn't exactly walking like John Wayne, more like John Wayne's grandad and every movement seemed to be agony for him. I did my best to help, but the frustrating thing is that there is so little I can do except to nag him to take his tablets. I try my best to tell him to be careful, but he still does as he likes. I admire him for that, he hates to give in, but I am so relieved that he had the sense to work from home today.
Thursday, 15 September 2011
We all live under the same sky, but we don't all have the same horizon.
I rarely mention my work when I write the blog, but today I am going to break my own rules because this trivial incident made someone feel so good and all it took was a little effort. A lady came up to me to ask a question, I could see that she had difficulty in walking and when she asked her question her speech was hard to understand. I guessed that she may have cerebral palsy. I latched on to the couple of words that I understood and repeated them asking if that is what she was looking for. I was rewarded with a huge smile as she realised that I'd understood her without making her repeat the question. I told her that I would show her what she was looking for and I walked with her at her pace to the correct place. Her friend came up to us and the lady almost danced with excitement as she told her that I had understood the first time she spoke. It was such a small thing and it cost me nothing, but it made a big difference to her - and it made me feel pretty good too.
In my family there are several people with disabilities. I don't think it really gives me any special insight, but the one thing that they all have in common is that they want to be able to do the things that other people do and they want to focus on their ability rather than being defined by their disability. I don't really understand why other people seem to find that so difficult to understand that. My son has a disability (autistic spectrum disorder) which would not be obvious to someone who only met him briefly. Ordinary things like shopping have brought extra challenges for him - and me! There have been a few occasions when people who should have known better have treated him very badly and made things more difficult for him. Usually this could have been avoided completely if people were a little more accepting of difference and less critical of behaviour that they do not understand. My son is amazing and I am really proud of the way he copes with life, but it has taken him a long time to admit to his disability and to accept help when he needs it.
Robbie also has a largely hidden disability, he has spina bifida and it causes more or less constant pain and difficulty in walking. He wants to be seen as just a normal person like everyone else, but he has had to admit that sometimes he needs extra help with certain things. OK, I know that Robbie is a little more unique than most, and the word normal really doesn't suit him, but you know what I mean. Little adjustments like having additional leg room makes travelling much less painful for him. I don't need to list everything, but a lot of small adjustments add up to a big difference to someone's ability to cope with a disability. So when you see a young and apparently able bodied person sitting in a seat offering extra leg room, or using other facilities provided for people with disabilities don't be too quick to judge, their disability may not be obvious.
We awaken in others the same attitude of mind that we hold towards them.
In my family there are several people with disabilities. I don't think it really gives me any special insight, but the one thing that they all have in common is that they want to be able to do the things that other people do and they want to focus on their ability rather than being defined by their disability. I don't really understand why other people seem to find that so difficult to understand that. My son has a disability (autistic spectrum disorder) which would not be obvious to someone who only met him briefly. Ordinary things like shopping have brought extra challenges for him - and me! There have been a few occasions when people who should have known better have treated him very badly and made things more difficult for him. Usually this could have been avoided completely if people were a little more accepting of difference and less critical of behaviour that they do not understand. My son is amazing and I am really proud of the way he copes with life, but it has taken him a long time to admit to his disability and to accept help when he needs it.
Robbie also has a largely hidden disability, he has spina bifida and it causes more or less constant pain and difficulty in walking. He wants to be seen as just a normal person like everyone else, but he has had to admit that sometimes he needs extra help with certain things. OK, I know that Robbie is a little more unique than most, and the word normal really doesn't suit him, but you know what I mean. Little adjustments like having additional leg room makes travelling much less painful for him. I don't need to list everything, but a lot of small adjustments add up to a big difference to someone's ability to cope with a disability. So when you see a young and apparently able bodied person sitting in a seat offering extra leg room, or using other facilities provided for people with disabilities don't be too quick to judge, their disability may not be obvious.
We awaken in others the same attitude of mind that we hold towards them.
Sunday, 21 August 2011
All Good Things Come To An End
We are not going home until Sunday, but Saturday morning found me packing up most of our belongings and cleaning the bungalow as my mum and step father were coming to start their holiday. Every year i promise myself that we will take much less, but every year we break that promise. We were so busy before we came to Norfolk that packing was a rather hit and miss affair, but how did Robbie mananage to bring 28 Tshirts with him, did he seriously think he would wear two Tshirts every day? In reality he has only worn a handful of his favourite tops, because I have washed them so that he could wear them again.
Finally we were all packed up and the bungalow was clean and shining so we could get on and enjoy the day. Robbie was in a lot of pain and it was making him lose patients with his jigsaw, so I did a bit for him - it is so hard but I was determined that we would get it finished. I didn't do very much because Robbie took over again to finish it, it looked fantastic when it was completebut after taking a photo we had to break it up and pack it away.
we went down to the beach because I wanted to take some photos and as we stood there looking out across the beach a seal popped up directly in front of us, within seconds he was gone again, but for the next few minutes he kept popping up and then vanishing again. Robbie and I watched until he swam away along the coast. It was a very special way to mark our last day in Norfolk.
When we went to bed Robbie got me up to look out of the window at the moon and it's silver reflection on the sea -he can be romantic after all, he just hides it well!!
Finally we were all packed up and the bungalow was clean and shining so we could get on and enjoy the day. Robbie was in a lot of pain and it was making him lose patients with his jigsaw, so I did a bit for him - it is so hard but I was determined that we would get it finished. I didn't do very much because Robbie took over again to finish it, it looked fantastic when it was completebut after taking a photo we had to break it up and pack it away.
we went down to the beach because I wanted to take some photos and as we stood there looking out across the beach a seal popped up directly in front of us, within seconds he was gone again, but for the next few minutes he kept popping up and then vanishing again. Robbie and I watched until he swam away along the coast. It was a very special way to mark our last day in Norfolk.
When we went to bed Robbie got me up to look out of the window at the moon and it's silver reflection on the sea -he can be romantic after all, he just hides it well!!
Monday, 15 August 2011
The sea hath no king but God alone - Dante Gabriel Rossetti
Robbie sat and watched while I wandered around taking photographs. He was enjoying the sun and for the very first time this holiday he allowed me to take a photo of him. He is very unhappy with his hair at the moment because he was so busy before we came away that he didn’t have time to have his hair cut. Hopefully we will put that right in the next few days .
This evening we popped into Tesco for some milk, but Robbie really struggled to walk around the shop, the pain was almost beyond endurance and it has continued to be really bad all evening. He tries so hard not to make a fuss, but you can see that he hardly knows how to move. I wish I could do or say something to make him feel better, but it is usually better to say very little and not to make a fuss, the last thing he wants is sympathy. He will have to go back to the doctor when he gets home, he can’t go on like this.
Monday, 8 August 2011
'You either get Norfolk, with its wild roughness and uncultivated oddities, or you don't. It's not all soft and lovely. It doesn't ask to be loved.' Stephen Fry
We woke up to a lovely quiet and sunny morning, I felt much better after a long sleep and after a refreshing shower and one of Robbie’s legendary bacon sandwiches I was ready to face the day. I finished off the unpacking while listening to the Archers and Robbie had a shave and shower, then we were ready to go to the local car boot sale. I love car boot sales, but we only go when we are on holiday because we already have far too much junk in our house.
Robbie had very bad cramp in the night and it had left him with a very painful leg, but he managed to walk around the reasonably well. He didn’t want to buy much, just a couple of music cassettes and a book of railway postcards, but he enjoyed searching through boxes looking at old die cast vehicles and various model trains. I bought several cds including Summoned by Bells, the verse biography of John Betjeman, we enjoyed listening to the first part of it when we got back to the bungalow.
It was mid afternoon when we got back from the car boot sale. It was nice to have time to just sit and look out across the sea and enjoy the calm that time away from reality brings. There was plenty to see first of all we saw a life boat travelling at speed along the coast, Robbie went out to take a photo, but his blackberry was not powerful enough so he dashed back for his camera. Then there were two lifeboats and a little dinghy type lifeboat and then he said that there was a fourth boat. I wonder what was going on.
Robbie had only just settled down again when another boat came past, it was fairly close and Robbie rushed out again for a better look. He said he thought it was a customs boat and he came back in to look on the site he uses to identify the shipping in the area. It was a nice relaxing evening, we watched DVDs, and enjoyed the unusual feeling of having nothing pressing to do – I could get used to this!
Robbie had very bad cramp in the night and it had left him with a very painful leg, but he managed to walk around the reasonably well. He didn’t want to buy much, just a couple of music cassettes and a book of railway postcards, but he enjoyed searching through boxes looking at old die cast vehicles and various model trains. I bought several cds including Summoned by Bells, the verse biography of John Betjeman, we enjoyed listening to the first part of it when we got back to the bungalow.
It was mid afternoon when we got back from the car boot sale. It was nice to have time to just sit and look out across the sea and enjoy the calm that time away from reality brings. There was plenty to see first of all we saw a life boat travelling at speed along the coast, Robbie went out to take a photo, but his blackberry was not powerful enough so he dashed back for his camera. Then there were two lifeboats and a little dinghy type lifeboat and then he said that there was a fourth boat. I wonder what was going on.
Robbie had only just settled down again when another boat came past, it was fairly close and Robbie rushed out again for a better look. He said he thought it was a customs boat and he came back in to look on the site he uses to identify the shipping in the area. It was a nice relaxing evening, we watched DVDs, and enjoyed the unusual feeling of having nothing pressing to do – I could get used to this!
Subscribe to:
Posts (Atom)

















