Have you ever found yourself in a situation where you understand every individual word but the sentence still doesn't make sense? Those with experience of building self assembly furniture would probably answer with a resounding yes. Have you come close to tears of frustration when trying to communicate with someone apparently speaks the same language as you? If you have ever had to deal with an overseas call centre the answer is probably yes! For most of us those things may be irritating or even upsetting, but they only happen occasionally and then they are quickly forgotten.
For people with Asperger Syndrome or Autism communication difficulties are a constant challenge. To some extent it is a hidden disability; people with Asperger Syndrome can often be pedantic and obsessive about certain subjects which other people find exhausting or even irritating. They find social interactions difficult because they are not good at reading or predicting situations and they often struggle to interpret emotions or the subtle subtext of what is being said. However these difficulties can be masked to some extent by a wide vocabulary and good linguistic skills, so other people may not realise that the person has not understood. Instead of being understanding, other people can become hostile and angry.
On Saturday I met a 45 year old man who has been the victim of online bullying, because he didn't fit in. He hadn't done anything wrong, he was just a bit obsessive about his favourite subjects which other people found annoying. I felt terribly sad when this chap told me that he knows a lot of people, but he has no friends. We chatted for well over an hour and I realised that he is a very knowledgeable, interesting man who means no harm to anyone. I just want to make a plea from the heart, please don't be too quick to judge people who are a bit different because they may have a hidden disability. It takes all sorts to make a world, and just a little bit of understanding and tolerance makes the world of difference.
A telephone call on Friday afternoon left me in tears, but that is the end of the story, I need to start from the beginning. At 6am on Friday morning Robbie had left for work and I was standing in the kitchen ironing shirts and feeling very apprehensive. Two members of my family had important meetings that day and there was not a thing I could do to help either of them except to iron shirts for my son in the hope that looking neat and tidy would help him to make a good impression.
I have spent my life worrying about him, trying to keep him safe and generally trying to do my best for him, he may be 17 and almost grown up but I still worry and I still do my best to support him. Life is often challenging for people with Asperger's Syndrome or Autism but it can also be mentally exhausting for those who love them. I don't usually write about my son's Asperger's Syndrome because he tries so hard to be just like everyone else. He doesn't want to be labelled, he just wants to be accepted as himself, but in order to achieve that he has had to work hard to understand other people and to understand himself. It has been an up hill struggle, but I am so proud of him because he never gives up, even when things go wrong he keeps on trying.
He had applied for an important role within his school and on Friday he had to attend interviews as pat of the the selection process. We all feel anxious about interviews, but for my son facing people he didn't know, managing to maintain eye contact, to answer questions and (most important of all) to know when to stop talking was a really big challenge for him. I felt apprehensive all morning, and it was a relief to get a text from him saying that the interviews had gone well. He told me that he would know the outcome by the end of the school day, so he still had an anxious wait. I wished him luck and reminded him that whatever the outcome, it is all good experience.
I can't believe the change in him since he moved to that school. They have helped him to believe in himself, to believe that he can do things and to dare to aim high. His old school had high academic standards and he did well there, but I never felt that they cared about him as an individual. His new school had a different outlook and he has thrived.
I watched the clock, 3.15pm came and went and I convinced myself that it must be bad news. Then at almost 4pm my son rang to say that he had been selected as a vice president of his school for the next academic year (boys are not allowed to stand for president because it is a girls school). I was just on my way out to the supermarket when I took the call, I was so please for him and so proud of him, that I sat in the car with tears running down my cheeks. It has done him the world of good going to that school.
On Saturday lunchtime I answered the phone to find Emily sobbing on the other end. It was difficult to make sense of what she was saying and a ripple of fear ran through me, obviously something very bad had happened and as she and Laura were both at work my first fear was that something had happened to Laura. Through her tears Emily managed to tell me that one of her co-workers had died and Emily was so upset by the news that she had been allowed to go home. I dashed out to pick her up and by the time I found her she was a little bit calmer. Karen, had only been off sick for three or four weeks and the news of her death had come as a terrible shock. Emily liked her because she was a bit 'dizzy' like Emily and she was always helpful and friendly at work. She had young children so her death was especially sad. Cancer is such a cruel illness.
The previous day we had been delighted by the news of a new life and so soon afterwards we were reminded of the sadness of death. It is the way of the world, but the pain is especially bitter when someone dies so tragically young. It certainly pushes our own trivial worries back into perspective and it reminds us to make the most of our own lives.
Robbie went to a gig last night, to see The Breeders, so I spent the evening trying to stay awake because I had to pick him up from the station at 12.40am! He still managed to get up for work at 5.15am, but as usual I thought Monday morning had arrived far too soon.
Robbie disappeared soon after arriving home yesterday. He popped upstairs to the loo and vanished. He should have been helping me to finish off our evening meal, but there was no sign of him. Considerably later he thundered down the stairs armed with a couple of books. No, don't be silly they were not cookery books. He had chosen that particular moment to start a major search for a specific photo of two deltic's standing in a station. I am so used to him that I didn't even try to explain that the deltic picture is not a top priority when compared to the family meal, it would have been a waste of breath. I did mutter a few dark words later when I went up to the bedroom and found that he had ransacked it during his search for the elusive deltic picture, and if I get my hands on the colleague who set him off on this search I may have one or two meaningful things to say to him! Robbie won't rest until he has found it and neither will I - because I will be clearing up after him!!
Emily is due home from Poland on Tuesday afternoon and I will be so pleased to see her back safe and sound. She says that the tour has gone very well and all the concerts were successful, no doubt we will hear about it in more detail when she returns. I have been more worried about the fate of Ron, Emily's favourite character in Harry Potter. Emily intends to buy a copy of the latest book as soon as she is close enough to home to find an English version of the book. I was terrified that Ron would die in the book and Emily would arrive home in tears. It seems my fears for Ron were unfounded but as there are plenty of deaths in the book (at least 9 and a half) there is a strong possibility that Emily will emerge from the coach in floods of tears - she is a real softie. Come to think of it Hogwarts with soon rival Emmerdale for the most dangerous fictional location, I bet they have big problems getting life insurance!
