No Easy Answers

Robbie and I were rather anxious when we went to the hospital to see his consultant yesterday. We were surprised to find that we didn't have to wait very long until Robbie was called into the consulting room. The consultant explained that the MRI scan had been worthwhile because they were able to get some good pictures of Robbies spine and the pictures had been reviewed by a specialist at Oxford. As expected there was clear evidence of the damage caused by his spina bifida and they could see that his spinal cord was significantly longer than normal with less smaller branches coming from it. The good new was that there is nothing on the scan pictures to suggest that there is any tethering of the cord at the moment. There were words of caution too, Robbie should never have a lumbar puncture or any procedure on his lower back because it could cause serious damage. So the messsage was to keep walking, to accept the falling over and the pain as just part of him and to take great care of his lower back because if anything goes wrong with it they will not be able to put it right. It sounds a bit grim and it would have been nice if we could have found a way to stop the falls and to deal with the pain, but we didn't really expect that. I think we just have to be grateful that the news was as good as we could have hoped for. So now he just has to learn to bounce when he falls over and hopefully he will try not to fall in front of a car or a train!