Friday went past in a blur of activity, dealing with all those last minute jobs that have to be done before going on holiday. The day began with me chasing Robbie upstairs, he had been promising to go up to the loft to fetch some of my talking books for weeks and he had finally run out of excuses. Once he was safely in the loft I moved his ladder, to make sure he didn't escape until I was satisfied that all the jobs in the loft. There was a lot of thumping and clattering, it sounded as if he would fall through the ceiling at any minute, but just for once my worst fears were not realised. He emerged triumphantly bearing a box full of talking books that for the last few weeks he had insisted were not there, and he insisted that he had to have a shower before he did anything else. Unfortunately I had just run the bath for the dog and since Robbie was already dirty and semi naked (as usual) he was the ideal person to bath he dog! She wasn't overjoyed about the experience, but she behaved very well until I was safely out of range, then she shook herself vigorously and covered Robbie and the bathroom with water. Finally a rather damp and dejected, but clean dog and a clean and adequately dressed husband emerged to face the world and we were ready to go out and tackle the long list of errands that needed our attention.
We had already bought a whole trolley full of 'essentials' for the pets at the pet superstore, and we were heading to the garage to check the tyre pressure before braving the supermarket. Robbie had been getting increasingly annoyed with himself and he was ready to fall out with his own shadow. I knew what the problem was, he was in pain and struggling to walk, but there was nothing I could do to help. He sat in the car and used some of the more obscure and descriptive words in his vocabulary to tell his right leg exactly how he felt about it. Of course the leg took no notice, and Robbie grew increasingly angry with himself. In the end I had to get cross with him and remind him that many people with spina bifida would think he was lucky to be mobile and have fairly normal function. It sounds hard hearted, but I love him, I can't change the way things are, but I can do my best to keep him motivated and help him to keep a sense of perspective. He has to go back to the doctor to get his pain relief sorted out, but as usual I will have to drag him there!
We got everything done in the end, but by the time went to bed we were shattered and we had to make an early start on Saturday morning.
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